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Posted: Monday, May 1, 2017 8:29 AM

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The National Pancreas Foundation (NPF) is looking for a part-time Registry Data Specialist. The NPF provides hope for those suffering from pancreatitis and pancreatic cancer through funding cutting edge research, advocating for new and better therapies, and providing support and education for patients, caregivers, and health care professionals. The NPF recognized the need for a national database and pioneered the National Patient Registry for Pancreatic Diseases (NPR) to support treatments and research dedicated to all pancreatic diseases. The NPR will serve as a valuable resource to better understand the natural history of pancreatic diseases, the effectiveness of current treatments, and the quality of life of patients affected by pancreatic conditions. It is the hopes of the NPF and the medical community that the NPR will lead to the improvement of treatments, quality of life, and quality of care for patients with pancreatic diseases. This exciting new position can be located in our Bethesda office or at a home office nationwide. If you are interested in helping to grow our National Patient Registry, please send a resume, cover letter, and salary requirements to jobs@pancreasfoundation.org.

General Overview
The overall responsibility of the Registry Data Specialist is to assist the Registry Manager in the activities and functions of the National Patient Registry (NPR). This position will contribute to the strength of the collaborative data approach designed to improve care and develop new and better therapies for individuals suffering from pancreatic cancer, pancreatitis, and other pancreatic diseases.

Responsibilities
Reports to the Registry Manager
Aids in the operation and maintenance of the NPR database system
Performs study activities in accordance with the IRB-approved protocol
Handles confidential and sensitive data with integrity and discretion
Responsible for upholding legal and ethical aspects pertaining to data security, patient privacy, confidentiality, data exchange/ transmission, and adherence to requirements under applicable HIPAA regulations
Assists with routine data verification and quality control, ensuring data integrity and consistency with prescribed study protocol
Consistently and positively communicates and interacts with colleagues, supervisors, institutional faculty and personnel, patient participants, and/or external entities as necessary
Serves as a NPR resource and able to accurately represent the registry study
Efficiently and independently plans time, meets deadlines, initiates and follows through on tasks to ensure that goals and objectives specified for various programs are accomplished
Provides support with compiling and providing data reports and/or queries on request from medical staff, researchers, and administrative staff
Prepares periodic reports and records on program activities, progress, status or other special reports for management
Assists in facilitating workshops, webinars, meetings or conferences; coordinates logistics, scheduling and participant communications as necessary
Communicates with research participants as necessary to facilitate follow-up activities of the Patient Portal
Contributes to the production of the Annual National Patient Registry Report
Prepares, maintains, and updates website materials
Supports the maintenance of regulatory documents
Other responsibilities assigned as needed by the Registry Manager and/or Executive Director

Requirements
Minimum of an Associate’s degree in relevant scientific or technically relevant field; Bachelor’s degree is preferred
Minimum of two years of experience working with databases or datasets; previous experience in patient registries or health information management is highly preferred (e.g., cancer registry, trauma registry, medical records, medical coding, etc.)
Previous experience in clinical research and/or healthcare environment is strongly preferred

Qualifications and Skills
Computer literate with a strong interest and ability to work with large amounts of computerized information
Knowledge and understanding of medical terminology, anatomy, and physiology is very desirable
Focus on detail and accuracy of data entry required
Experience working with medical institutions, government agencies, expert stakeholder groups, and others
Exemplary verbal and written communication skills
Well-developed organizational and time-management skills
Self-starting and goal-oriented; able to prioritize projects and meet deadlines
Team-oriented philosophy with the ability to handle multiple projects at once
Proficiency with Microsoft Office and database management (e.g., Microsoft Access, SQL, etc.)

• Location: Bethesda MD, District Of Columbia

• Post ID: 28000888 dc
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